Emily Owen was a multi-talented teenager with the world at her feet. In her late teens she was diagnosed as suffering from Neurofibromatosis Type 2, a genetic disorder where tumours grow which eventually compress the brain and are a threat to life.

Tragically, in her teens, Emily Owen was diagnosed as suffering from NF2. Despite this she has coped with everything she has been through due to her strong faith, her supportive family and indomitable personality. Still Emily describes the years of gradual loss of the facilities that defined her life and her gradual re-evaluation of her life plans.